I just read today that “ALS Admits 73% of donations are not used for Research” (see below update), and it really ticked me off. Earlier this week they tried to patent the Ice Bucket Challenge but later dropped it when they were criticised.
Let me be clear about one thing, ALS is a horrible disease, and it deserves all the attention in the world but ALS did not come up with the idea. Back in early July, my buddy Jim did it in support for Molly and another friend fighting cancer. He called me out, I did it and so did my friends. Here is the point though, Jim and I gave people a choice to donate to any cause they wanted to. It was funny watching the kid’s reaction dumping cold water on their dads, and we all donated to the cause that was close to our heart. The best part was when my daughters dumped cold water on Scott Santarella, CEO of the Bonnie J. Addario Lung Cancer Foundation, and NBC filmed it.
These were all done in July, before ALS started getting a bunch of publicity starved celebrities and CEOs to jump on the bandwagon. All of a sudden it was the thing to do, and the cause was lost. Everybody was trying to out do the last person and some people even got hurt.
The ALS foundation owes good publicity this week. They should donate more than 27% (see below update) of the $90M to research, because not a single person will dump water on their head next year. At least not in CA, because there won’t be any water left in 2015.
QUICK UPDATE: It has been brought to my attention that the 27% donation may have been a misunderstanding. I don’t think this fact makes it too much better for them as everyone was under impression that the entire amount was suppose to go to research, and they still did try to patent the idea as their own.